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kimmylew avatar

New interstim implant advice needed, please

Bladder Conditions | Last Active: Oct 4 2:58pm | Replies (17)

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Profile picture for markpsp @markpsp

I am considering InterStim as an alternative to self-cathing. I have only been doing this since May (5X per day) and have been lucky not to encounter UTIs. The catheter I was using, VaPro Pocket, which is a closed system catheter, makes life easier especially when getting up at night. The catheter itself never touches anything outside of the body and is very hydrated which limits friction. Unfortunately, since I started on Medicare in July, those are only covered with strict requirements like spinal cord injury, or more than 2 UTIs. This brand may be an option for you since you experience a lot of UTIs. If you need info on where to get them, I can provide the company information.
I am currently supplementing my current GC Air catheter with the VaPro Pocket for night-time use to save me time in the middle of the night, but the cost is out of pocket. My sleep suffers. So.. I am planning to select a doctor for consultation on the Interstim, but I need it for under-active bladder. My urologist doesn't recommend it because he says its only for overactive bladder, but the website and the representative indicate its use for under-active bladder. And a second opinion never hurts. Is anybody aware of InteStim use for under-active bladder? I did put this out on another forum, but have not had any response indicating use or success for under-active.

Also, with use of your InterStim, are you limited with physical activity? I am fairly active with outside activities like bike riding, Pickleball, etc, so I am concerned about line placement and potential shifts. I will find out all about this during the consultation, I'm sure, but would love actual user feedback to help make a decision, and it sounds like there may be some knowledge here about the actual functionality of the device.

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Replies to "I am considering InterStim as an alternative to self-cathing. I have only been doing this since..."

@markpsp My urologist had me strictly limit my activity for two months after my implant. It was tough to give up biking and hiking all summer. She said u could go for walks and the most I did was about 2 miles slowly. But she wanted to make sure the leads that she had put in etc. had time to develop scar tissue and stay in place. I’m gradually trying to build my activity level up again now. I hope things are in there solid now,.

I’m still trying to figure out the right settings and have not had the chance I’m hoping for yet.