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Idiopathic intracranial hypertension

Brain & Nervous System | Last Active: Nov 25, 2021 | Replies (29)

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@smoothasice86

I’m finding from the link you provided that a lot of the women diagnosed with this had suffered symptoms for what seems like years, just peaks my curiosity because hers all happened so very fast within a couple of months time. I feel like we caught it quickly but I also wonder with it seeming to have been so severe that the damage done to her optic nerves is going to leave her in the dark for the rest of her life. We had been trying to get pregnant for months prior to all of this and had no success and I began to wonder if it wasn’t me that had issues but when I mentioned that to the doctors they told me this is why we could not get pregnant and now she understandably doesn’t want to get pregnant until she can see again because it will break her heart not to be able to see our baby if we ever have one. The doctors have said we can now go for getting pregnant but she still doesn’t want too😰

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Replies to "I’m finding from the link you provided that a lot of the women diagnosed with this..."

The concerns of you and your wife are reasonable, @smoothasice86. Have you considered seeking out a specialist in this disorder? It might take a little research to find just the right medical professional, however, it might be worth a trip to see such a specialist in order to make sure your wife is getting appropriate treatment. Your mind needs to be put at ease regarding the future of this disorder.

Is she now being seen in a multi-disciplinary medical center?