Yes she did have severe headaches along with burning/ringing ears and stiff neck. She was also getting floaters and grey spots in her vision or if she sat down or got up/turned her head to fast she would lose vision for a quick second. After the first fenstration surgery her sight was getting better for about a week but that was still before the vp shunt was placed. Then it started going south so they recommended a 3 day high dose round of iv steroids and after that was finished her sight went dark and that’s when they decided it was serious enough for the shunt to placed. After the shunt went in she was released from the hospital and we went home. In almost a months time we had the follow up Lp to check opening pressure to see if the shunt was working and they found her opening pressure to be over 60cc like it was before. She was immediately admitted and was in surgery to have the shunt revised. Now 11 Lp’s later and we are steady at 15cc opening pressure without the diamox thank god. The neuro opthamologist said she does have paleness in her optic nerves but all the swelling is completely gone now. I’ve read so much on this disease now I feel like a specialist myself and I’ve also read so many stories with people of like nature or worse with total vision loss regain it in a years time but like I said I’m just scared that she won’t get it back. I feel completely helpless in the situation