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Idiopathic intracranial hypertension

Brain & Nervous System | Last Active: Nov 25, 2021 | Replies (29)

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@oldkarl

Hi, @keza71 First off, I have absolutely no doubt about your history. None whatsoever. Many of those symptoms match many of mine. Some are different, but a lot of it is the same. Starting off, I have spent about the last 30 years thinking I was a hypochondriac. In fact, the chief cardiologist at the center where I was trying to get help simply said I was a nut case, and would not put anything but that in the records. This made it impossible to get help anywhere else. And the thing about pain and opiates. I cannot walk from the bathroom to my big chair without stopping for a break from the pain in my feet, knees, hips and back. Some kind of Amyloidosis is the probably culprit. And gaining weight is a curse, a sideline of Amy. Neurologists. Ophthalmologists. etc. etc. So I started keeping my own records and putting it on the 'net. Nice thing about Dropbox.com. Gives me a chance to talk and talk, and........ I had about 10-15 concussions in my younger days, and not all from angry girls. So you can imagine what my head feels like. I have cerebellar amyloid amorphous deposit, like Alzheimer, and other deposits all over my body. Well, honestly, I doubt I need to have an excuse to operate like I have Alzheimer's. Anyway, Be certain you are dealing with a well-experienced and funded center, not just local medicos. Places like Mayo-MN, Brigham and Women's, Cleveland Clinic, Fred Hutchinson. Have them check for mis-folded protein in the blood and urine, etc. If they tell you they cannot find the problem, just tell them maybe if they actually thought they might get paid they could look a little harder. And hang in there. I figure suicide is probably not all it seems it would be. I figure I would still have to deal with someone like Pilate.

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Replies to "Hi, @keza71 First off, I have absolutely no doubt about your history. None whatsoever. Many of..."

Hi, @oldkarl Thank you for your response. I did fail to mention also that I live in Queensland, Australia. Specialists are very hard to find here. Especially ones that deal with neurological disorders. It's an uphill battle.