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← Return to Parsonage turner syndrome *
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Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)
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Hi, @smf - just wanted to let you know I did move your post here as @johnbishop suggested to this existing discussion on Parsonage Turner Syndrome so you can connect with others on how they are coping and what progress one can expect. Hoping @kgoodwin9 @jjspokane61 @11b20 @adriennes @elained @richman54660 and others will have some thoughts for you.
When were you diagnosed with Parsonage Turner Syndrome, @smf? What have you found particularly useful in managing your condition thus far?
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Hello Lisa, Thanks for finding the right place for me. I am very interested in connecting with others. I was diagnosed in May of 2019 with PTS. It was the result of a broken wrist, either the surgery but most likely the nerve block. I am a 68 year old woman who has never had any serious illness or surgery. I worked out, was very healthy and full of energy and joy. This has changed my life significantly. I have it on both arms. My right hand is severely affected. Thumb and forefinger is totally numb. Top digits of both thumb and forefinger will not bend. Always feels pins and needles at best.
I have started using CBD lotion this week. Will see if this helps. Gabbepentin helped in the beginning when I had more pain...but no help to pins and needles, so I stopped. I exercise my arms and hands almost daily. I do yoga once a week. I distract myself through activity, such as working on my art gallery/shop and my photography. BTW: I can no longer use my camera or read which I used to love to do.
I have other questions for the group but for now, I hope this explains a bit more about me and my managing and coping