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Undiagnosed and frustrated: RA? Lupus?

Autoimmune Diseases | Last Active: Sep 14 8:56am | Replies (22)

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Profile picture for jbocds1968 @jbocds1968

just had to say - hello, I have been in your boat for many years. intermittent swelling of my lips tongue and throat. epic-pen - emergency rooms - no diagnosis. all tests are negative but anemia and b12 deficiency - always exhauded...trying to accept. Mostly I feel like a hypochondriac when things come back normal... I have never been normal. hang in there - trying to accept - it is what it and surely we both know we are not happy with our state and surely we both know we are not having fun,

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Replies to "just had to say - hello, I have been in your boat for many years. intermittent..."

@jbocds1968 Welcome to Mayo Clinic Connect! We’re glad that you found us! You’ve been in and out of the ER many times, but have they sent you to an allergy specialist? The allergy doctor could test you for many things including foods and dyes. Can you or your parents have any clues as to what might have happened just before the rashes and tongue swelling? But let’s let those members, who have experience, get a chance to help you!