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Diagnosed with Meningioma

Brain Tumor | Last Active: Sep 26 9:38pm | Replies (92)

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@daisyr: I browsed through my posting history and hopefully was successful in my attempt to copy and paste 3 of my posts to you as private messages. Especially the last one I sent that starts with, "Quite an array of responses. I guess I will add my own," is a pretty detailed account of my experience. So please let me know if you received the private messages. I will add another thing which is that while you're in the hospital, post craniotomy, they keep your head at a 45 degree angle. I bought 2 incline pillows (like the ones people use while sleeping if they suffer from GERD) and the two of them on top of each other kind of matched the 45 degree angle. I used them for another week after returning home. Also, I was on steroids for a month. My neurosurgeon's N.P. ( who removed my 42 staples) told me that the protocol for steroids used to be 3 months, many neurosurgeons were now prescribing for just 2 weeks, but Dr. Theo... kept his patients on for a month, to prevent seizures. The day of discharge the pharmacist came up to go over all my meds (he had a PHD in pharmacology) and after reviewing my steroid schedule turned to my husband and said, "Good luck with that." As you probably know, supposedly steroids can make you prone to anger. Of course that wasn't so in my case. 🤣

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Replies to "@daisyr: I browsed through my posting history and hopefully was successful in my attempt to copy..."

@mkoch thank you so much! I already sleep on a wedge pillow for sleep apnea so I’ll plan to grab a couple prior to surgery at hopefully a local Target or somewhere in Florida. I’m flying from NY. They are asking me to wash from the neck up with Provodone iodine the night before and morning of surgery which I’m pretty nervous about. 42 staples seems a lot. Was it a frontal craniotomy? Did they just shave a portion of your hair? I’m concerned double vision might make me nauseous. Did it bother you? Thanks again for sharing. Much appreciated.