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DiscussionI can survive chronic pain, but how do I live with it forever?
Chronic Pain | Last Active: Sep 13 11:57pm | Replies (27)Comment receiving replies
Replies to "@jpj1952 I understand basing your life on a certain kind of hope-a hope that has absolutely..."
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@rockon79 For me giving up hope of my pain going away was the key to moving on and living my life. I had been spending all my energy searching for a solution to end my pain. All I could think about or talk about was my pain and doctors and meds and treatments, and my distress and upset.
Once I saw that clearly, I realized I didn't want to spend my life that way, or become a totally bitter person. The Acceptance and Commitment Therapy group I was in led me to think about what I cared about, what reasonable goals I could set, and to break it down into steps as tiny or large as I could manage. To my amazement 9 months later, with a lot of help, I had organized a show of my photography in town. That was pretty cool!
But there were plenty of days when my pain was all-consuming, and I know that could happen again. I try new treatments suggested by my pain team, and some have lightened my pain burden. The disability that goes with it continues, and that's become harder to accept than the pain.
Acceptance is an ongoing challenge. I still have pangs and grieve that I will never again walk my favorite beach or boogie-board. I also feel lucky for the times I did.