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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@lisalucier

@jjspokane61 - thanks for providing this information about all the therapy you've undergone for your hands with the PTS. I'm sure this will be very helpful for other members.

Was your doctor hopeful that you might get your hand function back to 100 percent, @jjspokane61?

I also wanted to ask @survivingpts in this PTS discussion to talk more about the acupuncture experiences mentioned that helped with PTS-related pain.

@vgottlieb24 - I believe you were saying you think that having acupuncture at a spa might be related to the start of PTS for both you and your sister?

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Replies to "@jjspokane61 - thanks for providing this information about all the therapy you've undergone for your hands..."

Update: I had the 2nd steroid injection in my hand 1 week ago. This 2nd shot was NOT nearly as painful as the first (I think because it was less swollen so there was more room for the extra fluid). As of 3 days ago, I am ABLE to make a tight fist now! The tendons are still tight - but less painful than before. I keep opening and closing all day long... so excited to be able to! I will continue with the gabapentin for now... maybe if all is still good with the hand in a couple of weeks I'll start another attempt to get weaned off the drugs! 2018 has NOT been a great year for me... excited to keep getting better and hoping for a much better 2019! So... the take away from this is... if you have the fixed finger issues due to PTS... make SURE you go and see a HAND specialist. Tell them to consider that this may be tendonitis caused by the swelling in your hand. I'm so pleased with my outcome at this point... I want that for everyone else suffering out there!!! Merry Christmas!! JJ