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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@chriso12345

@lisalucier - next appointment with EMG is Tuesday, November 6th. Symptoms seem to have stabilized somewhat in the last 2 weeks. Arm pain is much better. Pinkie finger is normal. Everything else on right hand is a crazy combination of numb, painfully swollen, and hypersensitive. Started wearing a thin cotton glove wrong side out (seams hurt) to bed. Husband calls me Michael Jackson and that’s okay.

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Replies to "@lisalucier - next appointment with EMG is Tuesday, November 6th. Symptoms seem to have stabilized somewhat..."

I wear breathable hairdressers black gloves on both hands in the day so that I touch things. Otherwise I can't even touch my clothing let alone remove them. Keeping them warm without being hot seems to work the best. Low barometer readings are killer. Warm summer days best. But to be honest nothing stops the burning. Both baby fingers are totally fine. Ring finger the side next to baby finger is ok but the other side burns. Palm and pads just below my fingers. When it first happened I lost about 60% of the use of my hands. I couldnt meet my thumb and forefinger. Although it's far from usable I can pick up things and I have a spoon will stuff like plumbers wrap around it. Cutlery is to small it falls out of my hands. Some days I can even paint but they are getting less and less since I am unable to get the cannabis oil since Saskatchewan Canada cannabis laws changed.now all that is available is bud which I have to smoke. Couldn't roll a joint if I tried for hours. So here it's all about recreational as they removed all medicinal forms. I was up to a gram a day of RSO oil in a capsule. You just have to swallow. Put the bottle in safe place with other medication and Bob's your uncle. Suffering in Saskatchewan

@chriso12345 - fun that your husband calls you Michael Jackson with the cotton glove you wear to bed. Hope your appointment goes well today and you let us know how that goes.

@confused1955 - that sounds very hard having this burning that nothing stops. When you are able to paint, what subjects do you paint?

@christo12345 Same for me... turned the compression gloves inside out... do not understand why they aren't made that way in the first place!! I was wearing my glove in the grocery store this summer... some snot hole teenage girls made fun of me! "Nice glove...". I really wanted to punch them in the face... at the time it made me really sad... I've got a little more perspective now... but STILL wish I could make them understand the hurt they caused!! Also found that wearing the glove opened the door for people to ask me what was wrong with me! Why was I holding my arm strangely and couldn't use it at all. Couldn't push the cart, couldn't lift the heavy items etc. Once you wear the glove they feel open to asking questions... which was fine with me... the problem was I didn't have anything really to tell them. I'd just say "I've got a pinched nerve". That was enough. When I was in hand therapy, had the same issue, people had all these cool injuries... "ran my hand through the power saw", "smashed my hand in a door" type of injuries... then they would ask me what my issue was... I've got nothing to tell them! Nothing to point to as a cause... just woke up in horrible pain...