@kobellava I totally agree that patients know more about their disease than doctors, and some time ago, one actually admitted that to me. I always research not only my diagnoses but also the combination of symptoms I experience and frankly, when there has been a difference between my doctor's diagnosis and mine, I have been right 100% of the time. Not a bad record! Doctors are trained to diagnose according to algorithms. Public health people (my background) are trained to look more globally, as well as to keep looking until you find the answer. My rheumatologist missed the early signs of my going into prednisone withdrawal and although I hadn't heard of the possibility, I did recognize many of the symptoms as something different going on that seemed rheumatological in origin. Having been recently "misdiagnosed" by a stupid triage nurse as having heart problems when I was going into an adrenal crisis, I am terrified of the continuing tendency of the medical profession to react to it like Pavlov's dog to a bell -- hear "heart rate" diagnose heart attack. And if I ever start to experience GCA, the diagnosis will be stroke, and precious time will be lost while the stroke team tries to shove me into their box. I saw this happen with my husband when his amyloidosis caused swallowing problems. Hours of tests, repeating repeating repeating in a vain attempt to prove it was a stroke. The resident in the ER told me he didn't think so but his "team" (who were not present) kept insisting it was. I was only the little woman and summarily dismissed.