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Hi, I haven't posted in awhile, I've had 3 neurologists, each one having treated only one person with PTS, so after 2 years , I'm still suffering numbness, nerve pain, and weakness, but, in the big picture, I am so very much better! Hang in there, heat works great. Gabapentin I can't go without, but in lower doses I always wear a glove but can't handle compression, just leather, pilates and walking a life saver, exercise with no or little body jarring. I tried massage and cupping, made it worse. I am finally getting movement in my thumb and forefinger. Time, lots of time. I still take painkillers maybe one a week cold air is not our friend, hypersensitivity is what I have now. Just knowing others have this, that I'm not crazy is huge.
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I’m very happy for you that after two years you are beginning to show improvement. I was encouraged to read that. I am nearing the end of my 21st month and am not showing any improvement. I keep waiting, hoping, and praying for a positive change. I try to remain as active as I possibly can, but I’m limited by my pain and the effects of my pain meds. I hope and pray that PTS will one day be a thing of the past for all of us!
@adriennes I just had to 2nd your comment here... I'm still miserable... but compared to where I was 4-5 months ago I'm SO much better! I hope I can say the same again 6 months from now! Getting motion back in the hand is huge... and that frustration of not totally understanding WHERE the pain comes from... feeling like your crazy and it's all in your head! Poor family members do their best to understand but coming here and talking to kindred spirits is great therapy!
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HI, @adriennes - Thanks for the update. Will you share more about why you think the massage and cupping made things with your PTS worse and why the pilates and walking seem to be working well?
@chriso12345 - how did your next appointment and the EMG go?
@missme - are you still using the compounded cream with lidocaine, guaifenesin, ketoprofen and magnesium you mentioned some time ago? If so, is it helping you?