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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@chriso12345

Difference between seeing a Neurologist and an Orthopedist? After going to Urgent Care for elbow pain in September, I was sent home with prednisone and a referral for an Orthopedist. He was quick to tentatively diagnose Parsonage Turner's after an EMG and ultrasound. I don't have a definitive diagnosis yet (thought I did) because symptoms keep changing. Elbow pain has improved, but then I lost ability to make an okay sign with thumb and index finger - Kiloh Nevin Syndrome. Now, I also have bad hand swelling, poor grip strength, and hypersensitivity to touch. All this to ask is this "normal?" From what I'm able to find about this, is it all about managing the symptoms until it runs its course? @briannave Are you able to do any type of PT yet? I was doing a couple of half marathons a year and being unable to do any type of exercise is very stressful. Should I consult with a Neurologist? The Orthopedist said that I am their only patient with what they think is PTS. Next appointment is a week and half away - another EMG.

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Replies to "Difference between seeing a Neurologist and an Orthopedist? After going to Urgent Care for elbow pain..."

You are fortunate that the orthopedist suspected PTS. My orthopedic surgeon assured me that I needed ACDF surgery which I had and didn’t help. I then went to neurologist #1 who ordered an MRI of my brain and a lumbar puncture. Neither showed anything abnormal. He then performed an EMG which had me jumping off the table because it was so painful. He said that I was overly sensitive to it. He never came to a diagnosis. I went to neurologist #2 who also did an EMG. This time it was pain free. He ordered extensive bloodwork, all of which was normal. He came up with a diagnosis of atypical PTS. 21 months later I still have it and am not showing any improvement. My pain is terrible, but is somewhat controlled with meds, compression gloves, and heat. I would definitely see a neurologist. Try to see one who is highly recommended. Read patient reviews. Good luck!

Hi. I am seeing a neurologist and a pain management specialist. I get the same feedback about how rare it is but I feel confident in their hands. My husband is physician and after all his conversations with doctors at Jefferson Hospital in Philadelphia these 2 specialist were considered the best way to go