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neesie0159 avatar

Reclast experience sucks so far.

Osteoporosis & Bone Health | Last Active: Oct 9 7:15pm | Replies (36)

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Interesting that Prolia didn't work.
Interactive doctors are the best.
You have a while to determine which medication to take next because you can't get Reclast out of your system. You're good for a year or two provided Reclast is working. That pain level is extreme, but there are published case report of patients being hospitalized after the infusion. I hope the pain is improving, if it hasn't sufficiently by Monday, you might best ask for steroid. The speculation is that the initial cytokine reaction can be self sustaining without regard to the medication. Steroids aren't fun and they aren't good for the bones. I've read that a five day isn't bad for the bones the way long term inflammation is.
Your provider probably would have told you if they'd known. It's surprising how many prescribers tell their patients that the side effect isn't because of the medication.

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Replies to "Interesting that Prolia didn't work. Interactive doctors are the best. You have a while to determine..."

@gently Pain gradually got better and last night/ this morning is so far mild, thankfully. I honestly wish I could do Evenity again because of the amazing results, but I know that isn’t a common treatment sequence so even if my doctor wanted it my insurance would probably deny coverage. I have heard somewhere that it’s less effective after bisphosphonates, but I had been on Fosamax for a few years before Evenity and still got much better. I’m tired of meds just maintaining my crap bones, I want them to improve. Maybe in a year more options will be available.