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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@patrick17

I’m so sorry for your condition. At least you have been diagnosed early. I have kept a timeline of my condition on the computer. Sometimes when I see a new doctor I will give him/her a copy. Anyway, it’s good to be able to look back and see how things have progressed and how I have been treated. I’m sure it is devastating for you since you were so used to working out. Hopefully your condition will be temporary. Most people with PTS do get better in time. Try to focus on what you can do instead of what you can’t do. Get yourself a good pain management doctor. Try listening to meditation music. It can be very calming. You will look at the world differently now. This takes a lot of patience and acceptance. I hope you will recover to your full strength!

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Replies to "I’m so sorry for your condition. At least you have been diagnosed early. I have kept..."

So well said, I wish I had kept a timeline, it is so important to focus on what you can do not what you can't, life is very different after this disease, there are ways you can work out, it really helps and takes your mind off the pain