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It seems I have they same rare form where I have lost they ability to open my right hand and have about 20% strength in my grip strength, wrist and tricep. I'm only a couple months in and my hand and forearm are starting to look like a skeleton from the muscle wasting. I've always been a big strong guy and work out often and this is devastating to me. It's been a year since this post that I'm replying to... any words of encouragement?
Replies to "It seems I have they same rare form where I have lost they ability to open..."
I’m so sorry for your condition. At least you have been diagnosed early. I have kept a timeline of my condition on the computer. Sometimes when I see a new doctor I will give him/her a copy. Anyway, it’s good to be able to look back and see how things have progressed and how I have been treated. I’m sure it is devastating for you since you were so used to working out. Hopefully your condition will be temporary. Most people with PTS do get better in time. Try to focus on what you can do instead of what you can’t do. Get yourself a good pain management doctor. Try listening to meditation music. It can be very calming. You will look at the world differently now. This takes a lot of patience and acceptance. I hope you will recover to your full strength!
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Mine hit me had as well. I was working out 5 or 6 times a week. Have you tried physical therapy? They helped me find movements I could do. Ultimately my doctor's diagnosed me with thymoma which is a rare cancer often associated with auto immune conditions. The removal of that time really seems to have resolved things but I still have a small deficit.