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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@chriso12345

@patrick17 Yes, reading has helped. There just doesn't seem to be a lot of information available online. It was surprising, but I guess it's just not that common. I plan to ask my doctor how many cases he has seen at my next appointment. I get the impression that it won't be many. Luckily he checks with another doctor in the practice and I think that's why the diagnosis was so quick. Doctor #2 did my EMG and ultrasound. Very thorough. I so sorry that your pain has lasted this long and is getting worse. Thank you for the suggestions! I received a pair of compression gloves on Thursday. Although I measured per instructions, they seem too tight so will trade up to see what a larger size will do. Going to the library today to investigate books about pain management. Meditation as well. Normally I read on phone or iPad but touching these with my right hand is painful, so it's back to physical books for me. Thanks for the encouragement! I hope you find more solutions for your pain.

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Replies to "@patrick17 Yes, reading has helped. There just doesn't seem to be a lot of information available..."

Hi, I haven't posted in awhile, I've had 3 neurologists, each one having treated only one person with PTS, so after 2 years , I'm still suffering numbness, nerve pain, and weakness, but, in the big picture, I am so very much better! Hang in there, heat works great. Gabapentin I can't go without, but in lower doses I always wear a glove but can't handle compression, just leather, pilates and walking a life saver, exercise with no or little body jarring. I tried massage and cupping, made it worse. I am finally getting movement in my thumb and forefinger. Time, lots of time. I still take painkillers maybe one a week cold air is not our friend, hypersensitivity is what I have now. Just knowing others have this, that I'm not crazy is huge.