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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@patrick17

I’m sorry you have been diagnosed with PTS. My advice is to read as much as you can about it. The good news is that it does improve in time. It is different for each person. I’ve read that steroids can be effective if done early on. I’m sure your doctor is aware of this. The progression of mine was a lot different from yours. It was 11-12 weeks before the pain went to my right hand after first having had severe shoulder pain. It has been 20 months for me and my pain is still getting worse. Both my hands are affected along with my right forearm. I take opioids and Lyrica for pain. They help some but I still have a lot of pain. Compression gloves help me a lot. I use Isotoner gloves. They are easy to get on and off and have a good stretch to them. It’s important to get the right size. I just ordered a compression sleeve for my arm. I know this will help too. I use heating pads all the time. I purchased one that I can put my hand into and it feels very good. I’ve tried several types of creams. None worked on my pain. I’ve tried acupuncture and cupping and they didn’t help my pain. I’ve tried CBD oil and medical marijuana. They didn’t help either. One thing I have started doing is listening to meditation music on the internet. It can be very relaxing. As I said, PTS is different for everyone. Hopefully one of the treatments I’ve mentioned will help you. Good luck! Stay strong!

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Replies to "I’m sorry you have been diagnosed with PTS. My advice is to read as much as..."

@patrick17 Yes, reading has helped. There just doesn't seem to be a lot of information available online. It was surprising, but I guess it's just not that common. I plan to ask my doctor how many cases he has seen at my next appointment. I get the impression that it won't be many. Luckily he checks with another doctor in the practice and I think that's why the diagnosis was so quick. Doctor #2 did my EMG and ultrasound. Very thorough. I so sorry that your pain has lasted this long and is getting worse. Thank you for the suggestions! I received a pair of compression gloves on Thursday. Although I measured per instructions, they seem too tight so will trade up to see what a larger size will do. Going to the library today to investigate books about pain management. Meditation as well. Normally I read on phone or iPad but touching these with my right hand is painful, so it's back to physical books for me. Thanks for the encouragement! I hope you find more solutions for your pain.