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neesie0159 avatar

Reclast experience sucks so far.

Osteoporosis & Bone Health | Last Active: Oct 9 7:15pm | Replies (36)

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Neesie, this reaction is fairly common 30 to 40% they say averaging 3 to 5 days. Tylenol is said to help. Some connectors recommend allergy pills. If it persists or becomes unendurable a last resort is steroids-- 5 day. If it becomes excruciating you might be able to obtain IV steroids at an ER.
I hope it goes away.
Once you choose Prolia, you are trapped into with Reclast, unless you just stay on Prolia, which I think is currently discouraged.
I also hear that exercise helps. but when you ache that isn't welcome information.
Do you mind if I ask if you have any autoimmune diseases. I've been trying to figure out why some have it so much worse that others.

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Replies to "Neesie, this reaction is fairly common 30 to 40% they say averaging 3 to 5 days...."

@gently I don’t have any autoimmune diseases. I have possible fibromyalgia ( depending on which doctor I saw over the years of random pain and other symptoms). I fully was prepared for flu like symptoms ( fever and fatigue), but the 7 of 10 level pain was not expected. All they mention is mild to moderate muscle/joint/bone pain, and this was above moderate.
I only went with Prolia because my former provider said it could further improve my bone density, which it didn’t, and I had to do something post-Evenity. Not sure what my other options are, but I have a new endo who’s a lot more responsive and hopefully we can figure it out.