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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@johnbishop

Hello @mydolly, welcome to Connect. Thank you for sharing what has helped your husband and how important it is to be your own advocate and work with your doctors on a treatment plan. Sometimes narcotics and non conventional treatments are the only thing that works for nerve pain which is probably one of the reasons we have a opioid crisis in this country.

I have no medical training or background but have done a lot research on pain drugs and when they work, they are great for the patient. Unfortunately prolonged use with higher and higher doses to deal with the nerve pain has a lot of bad side effects, including brain fog. I'm fortunate because the nerve pain drugs do nothing for my small fiber peripheral neuropathy because I only have the numbness and tingling for symptoms and not the awful pain. Not that numbness is good ☺ My hope is something that addresses the cause of nerve pain, damaged/dead nerves which the gabapentin, Lyrica and other pain meds do not address. The meds just focus on blocking the pain signals in the brain and not fixing or repairing the nerves. I think the real hope is in stem cell treatment if and when they can figure out how to make it work for the nerve cells. Until then, like you mentioned, we need to work with our doctors to get the needed relief.

John

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Replies to "Hello @mydolly, welcome to Connect. Thank you for sharing what has helped your husband and how..."

Hi John,
You are right in the fact that dead nerves can not seek any benefit from medication. I'm speaking for those who experience nerve pain (burning, sharp shooting, tingling, numbness) so they can find relief. Most doctors do not specify nerve pain and get people on the right medications. Neuropathic pain can be controlled and patients can have relief. The more we teach each other, the more people can take control of their pain issues in the correct fadhion. I hope you can find relief for your discomfort which I know is annoying. You are blessed that it is no longer hurting.