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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@jjspokane61

@patrick17 - EMG was just great... he decided to test both my bad and good arm so he could compare. Just grin and bear it that's my only advice. I double checked with him about the spinal injection... he said if the first one helped I should definitely do the 2nd one. That comes up on Sept 11th... 1st shot took 3 weeks to make a difference... would mean some more relief about the end of September if it helps again.. Something to hold out hope for! The real moral of the story for me is this... If you THINK you are having nerve pain you should just go straight to the neurologist. Don't bother going to your GP and getting the run around that will take months while you suffer. Dr told me today that if I had gotten in there sooner they could've put me on steroids (IV steroids) that would've minimized the nerve damage. If there's a next time with this pain, I will drive straight to his office and cry in his waiting room until he see me! My Dr is a MS specialist too... he told me today I still need the brain MRI... hoping to get that done next week or two. Cheers!!

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Replies to "@patrick17 - EMG was just great... he decided to test both my bad and good arm..."

jjspokane61, that’s very good advice about seeing a neurologist right away. Shortly after my neck and shoulder pain went away I developed nerve pain in my right forearm. I remember telling the physical therapist about it. I should have asked my primary care doctor to refer me to a neurologist. Unfortunately, it was another 3 months before I saw a neurologist. By then my hand and arm pain had really set in.

I just made an appointment with a neurologist at a university hospital about an hour away. The earliest appointment is in the middle of March 2019! Wow! Maybe I’ll take your lead and go to his office and cry until he sees me. I made the appointment, but I may try other places such as the Mayo or Cleveland Clinics. Hopefully, their appointments aren’t that far into the future. Good luck with your upcoming procedures!