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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@jjspokane61

Did you end up having hand surgery? When I told my neurologist that the hand dr wanted to do a tendon release he just nodded his head NO... I have been going for hand therapy to try and regain movement in index finger. Very painful process but I have seen some improvement. I did get my 2nd nerve conduction study done today - and it came back positive for nerve damage. Dr says that means I definitely have brachial neuropathy (PTS). Said I needed to be patient and it would get better with time...

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Replies to "Did you end up having hand surgery? When I told my neurologist that the hand dr..."

jjspokane61, no I didn’t have hand surgery. The orthopedic surgeon performed anterior cervical discectomy and fusion surgery (ACDF, for short) at C6/C7 because that’s where the MRI showed there might be a problem. Unfortunately, the surgery didn’t help. All it did was to cause similar nerve pain in my left hand as I had in my right hand. I wish I had gone to a neurologist for a second opinion. Oh, well...

After my surgery I saw a neurologist who ordered some tests for me (MRI of the brain and a lumbar puncture) and also referred me to a hand surgeon. The hand surgeon, who is top notch, realized I had bigger issues than just my hand and referred me to another neurologist. He actually called the neurologist right then and the next day I received a call from the neurologist’s office. I will always be grateful to the doctor for this referral. He could have just sent me on my way telling me that he couldn’t help me.