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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@jjspokane61

Well... I had another appointment today with a neurologist referred to me by my neurosurgeon. The goal was to have another opinion on whether I have Pasonage Turner. So... he did a reflex test on my arms which had unexpected results. My bad side had MORE reflex than my good side. He said that if I had nerve damage we would expect LESS reaction not MORE. He then stated matter of factly that this was a sign of a central nervous system or a brain problem. So now I'm scheduled for a brain MRI to rule out that possibility. I will have another nerve conduction study this Friday also(oh joy). The one I had back in May was apparently too soon after the onset of pain to be a reliable result. I'd be very curious to know if others with PTS have had reflex tests and what the results were? I'm trying not to worry about a potential brain tumor - but that's hard to take your mind off of!! The next step after this would be a MRI of my shoulder looking for inflammation that could explain the pressure on the Median nerve. ALSO... he stated that the spinal injection I had in July may have done some good since the steroid may have affected nerves in the brachial nerve complex. So... I'm scheduled for another spinal injection in 2 weeks - I had been debating about whether to go through with it, and based on what the neurologist said today I will do it!
@patrick17

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Replies to "Well... I had another appointment today with a neurologist referred to me by my neurosurgeon. The..."

jjspokane61, it’s good your doctors are looking for answers to o your condition. It sounds like you are in good medical hands. My first neurologist sent me for a brain MRI when I first saw him. Fortunately, everything was “normal “.I also had a lumbar puncture which also had no abnormal findings. I almost wish I hadn’t had the lumbar puncture done since that was an invasive procedure. I think my neurologist was mainly looking for MS and didn’t find it. He never mentioned PTS. I’m not sure why not. My second neurologist immediately put that on the list.

I have not had a reflex test done so I can’t help you there. I have tried acupuncture without success and am still going for cupping at present. After 3 sessions I can see a difference with the cupping circles, but I’m not seeing a big difference in my pain level. I’ll try it a little longer and see if there’s any positive results. Thanks for sharing about your spinal injection. I hope it helps you. My doctors have not mentioned this. I’m looking for pain relief OTHER THAN FROM MEDS! I will read about this and mention it to them. Good luck with your EMG test. I hope it’s not too painful!