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Profile picture for csimmonds @csimmonds

I am sorry to hear how your PMR advanced to GCA. I worry about that but so far am ok. My shoulders were my worst enemy. Sounds like we share the experience of bedtime pain and making the decision roll over and making a plan on how to get out of bed. I remember having to use one arm to lift the other. Reaching in a cupboard was difficult. Be glad you didn't have to put on a bra. I remember the agony of putting on shirts and coats. I was on Tylenol constantly. I am better now and hope it stays that way. PMR is such a strange disorder. I hope you improve. I know it can happen.

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Replies to "I am sorry to hear how your PMR advanced to GCA. I worry about that but..."

@csimmonds Thanks. I finished taking prednisone more than a year ago, and I take an Actemra injection every other week. I'm not having any symptoms or medication side effects except for a little fatigue around the time each Actemra injection is due. I'll have to monitor that and see how it goes. I'm glad you're better. PMR and GCA are both a lot to go through.