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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@painful

I feel for anyone going through this pain. This is the only time I have ever entered any kind of forum, because it is a lonely feeling. I did not have any luck with the Anti depressants. The only way to deal with the pai was to either use a hot patch preferably a hot water bottle or put an ice pack on the area of pain which as we all know can vary from the neck to you fingers. I spent to weeks in late March in Miami Beach having come down with Parsonage Turner in October having had A shgoulder operation for frozen should in February 2017. While in Miami, I did 3 intense session of accupunture followed by cupping. About a week later the paid began to go and within 10 days it was basically gone and I went from six to 8 pills a day to none. I soon started physio and have not had a bad day since May 1. The muscle wastage is still there and the strength is about 70%. I have started Pilates which is really good for it.
I do live in fear of a relapse but am just happy not to be in so much pain, which is why I am reaching out to you.

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Replies to "I feel for anyone going through this pain. This is the only time I have ever..."

Thank you so much. I never thought of acupuncture.

I was sent to that particular Acupuncturist because of her cupping skills. I thought the whole cupping thing was a bit of a novelty at the time, but at that stage I was happy to try anything. I now believe that it was the cupping more than the acupuncture. There was no immediate change until a week after ny third session. I was in my fifth month of pain. Good luck

Thank you for sharing your story. I am going to try acupuncture and cupping. I’ve tried many creams, occupational therapy, a chiropractor, but nothing has helped. I take liquid B vitamins every day and I try to eat well- no sweets or sugar. No more crackers. I just try to stick to real food. Diet is SO important, but not one doctor has ever said a word about it. Just had me try different meds most of which I could not tolerate. I hope you remain pain-free!!!