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Hello good people. I have been diagnosed wit pts for about 4 months now. Im a male 42 yrs. I believe it is more common amongs males to get this syndrome. With me there was no surgery or trauma. Just woke up 1 morning with neck pain & thought it from sleeping too much on 1 side. A week later had this stabbing pain on the shoulder bone. Been for MRI as well as nerve conductive studies. Doctors here dont have much experience with this type of syndrome. Currently going cor physio every 2 weeks but not much help there. I have also developed numbness and some pain on my right upper thigh jus below the hip bone. I think it is the pelvic area. I still have alot of pain. Part or the arm is totally numb. Theres also waste muscle. So from what i have been reading on this corum thus far is that this takes a long time to heal. I have also read somewhere that nerve transplant can also help with the recovery. I currently do not sleep much at night due to the pain. Pain is not as bad as the 1st couple of weeks though. Any advise regarding nerve surgery? Pardon me if i take some time to respond as im in south africa. The time zones are way different.
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Hello! It’s funny that I was reading online this morning about surgery for PTS. It’s the first time I’ve ever seen surgery for it. It was always take your pain meds, wait it out, and hope for the best. This is from the Hospital for Special Surgery (HSS) website:
With exciting new MRI and ultrasound imaging protocols, we have identified tiny twists or 'hourglass' constrictions inside nerves that were previously healthy, allowing us to diagnose patients more quickly and predict those who may not recover," said Dr. Scott Wolfe, chief emeritus of Hand and Upper Extremity Service at HSS. "In order to save the affected muscle, we’ve identified surgical techniques that release the nerve and restore function in a matter of months."
You can read more at hss.edu and then search for Parsonage Turner Syndrome. I hope this helps you and others. It’s always best to check with your doctor first. Good luck!