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My 25 year old son has recently been diagnosed with PTS. does anyone know a direct cause?? His pain and symptoms have occurred twice, both 5 years apart, the first after ankle reconstruction surgery and the second which he is experiencing now, after emergency colon surgery. What is the possible link? Positioning during surgery, an anesthesia agent used in both surgeries, etc...? At a loss!
Replies to "My 25 year old son has recently been diagnosed with PTS. does anyone know a direct..."
Hi @ckbray,
I'm sorry to hear about your son, and wanted to mention some information I found on NORD (National Organization for Rare Diseases). Unfortunately the exact or underlying cause of PTS is not fully understood, and it is believed that most cases result from an immune-or inflammatory response to some infection or environmental trigger that damages the nerves of the brachial plexus. You can read more details here: https://rarediseases.org/rare-diseases/parsonage-turner-syndrome/
The surgeries could very well have triggered PTS; what does the doctor say? How is your son coping with the discomfort and pain?
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How was he diagnosed? Hub had surgery not in horrid pain...over 4 nths of bad had neurologist do test said something in neck. I see he has stabbing in shoulder area where clean out surgery was done, and pain radiating down arm to fingers. How do you diagnose pts? What Drs are fail are with condition? What do you do to help yr don?