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I had my onset almost six months ago. I have bad pain in the palm of my hand when I stretch my fingers and especially bad pain in my thumb when I use it. Some days it is worse than others. Does anyone else have this or should I be pressing my doctor to look for a separate issue (perhaps from a bulging disc) that is causing this?
Adrienne, my experience sounds similar to yours š
Replies to "I had my onset almost six months ago. I have bad pain in the palm of..."
Insurance may not pay but you can write it off at tax time for uninsured medical expenses, I moved to personal trainers because I used up all my PT, I found someone who works with ME patients, she's amazing
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Multiple sclerosis sorry spell check, I feel for you, no one can know how this feels I appreciate hearing from you so much!
Hi @kimee I am so sorry for your pain. What tests have you had done? My doctors seemed keen on differentiating pain coming from the spinal nerve (like with a bulge) vs. some sort of peripheral neuropathy. They didnāt see anything on the MRI at all but something in the EMG nerve test caused me to be tossed into the PTS basket. I am not entirely convinced. It could be brachial neuritis, idiopathic (no better), or in my case a loose screw in the fusion hardware (not the first time)! So hard to get answers!! I am told ābe patient and take your pain meds.ā Well today I had to go up on my pain meds because lower dose stopped working. I am not cool with that
I would get second and third opinions. Doctors/hospitals should give you copies of any radiology on CD with reports. Always get reports from every doctor visit. I even spreadsheet my lab reports to see when infection/inflamation markers go up and down. Nobody figured out why when I was given antibiotics for bronchitis, etc. that it helped more than that. Turned out I had a big gall bladder infection. Doc reports will say they checked throat, eyes, stomach palpation's but during that visit YOU KNOW, they didn't do that as you have them mail you copies of labs and everything. After 4 years of losing 70#'s and looking like hell, I am finally coming back and that is AFTER they removed gall bladder and treated me for candida. I feel my neuropathy and calcinosis is a by product of the prescriptions they gave me. Good luck but document everything in a diary and talk to doctors about their office visit notes if you don't understand something.
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Sounds about right, some days are much worse than others, my thumb drives me crazy as well as my arm. Ive been doing mat pilates and cadillac exercises, i use an oov too, cross training weak side to strong side, retraining my brain to desensitize these crazy nerves. I don't know if it works but when I'm with my instructor I forget about the pain and concentrate on strengthening the deficits. I got my neurologist to write me prescriptions for pilates and massage therapy,