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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@dingdarling

Hi All - so glad I found this group. Just finding my footing after 5 level posterior cervical spine fusion. 2 1/2 months into recovery I was diagnosed with Parsonage Turner Syndrome. Doctors think it is not directly related to surgery but this area was still healing so vulnerable to this rare virus. Seems like it’s diagnosed by eliminating what it is NOT. I had an EMG which was abnormal. To me this test was uncomfortable but not painful. Also MRI of brachial plexus also images C5-T1 so you can see the spinal nerve roots. I was told it is self-resolving 4 months-1 year and to be patient and I am working with a pain doctor to manage the pain. Currently Percocet and Gabapentin. So little known about this and incredibly difficult to manage the PTS on top of neck which is barely healed and still so stiff and sore from surgery.

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Replies to "Hi All - so glad I found this group. Just finding my footing after 5 level..."

So sorry to hear you have PTS along with. All the other stuff. I've been plugging along with it for almost 18 months, a very long time. I found heat ,and positioning,helped with the pain along with meds. Hang in there, it is different for everyone and no doctor really knows anything, only what the very few patients have told them. I acquired mine after surgery, it's a long recovery, I'm happy to help any way I can