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Had another appointment at USF last week and my husband was in such severe pain, he could not make the drive.
The doctor told me it was the worse case of idiopathic Brachial Plexopothy she has ever seen and she could offer nothing more. She wants us to see another neurologist to see if he thinks a spinal tap may show something. Only problem being his first available appointment is July 5th. Doctor said she would see if she could get that moved up. She also mentioned, long term it could take 3-4 years to for Parsonage-Turner Syndrome to dissipate. Not very hopeful news.
Also, due to blood clots, he cannot do OT or PT and cannot use compression sleeve at this time. Have appointment for a new ultrasound on February 27th to check status of the clots.
Very disheartening at this point but we will never give up!!
Replies to "Had another appointment at USF last week and my husband was in such severe pain, he..."
It does take long to heal but that's the longest I've ever seen a doctor convey. July is too long to wait and unless the other doctor has highly specific experience I question the value. It would be worth going to Miami if necessary. It was my insurer that actually helped find the right specialist. Can you speak with a case worker at your insurance Co?
Thank you, Colleen. No, our local hematologist is close to the house and our local hospital, where the ultrasound will be done, is only a few blocks from our house. I am anxious to see what the test determines and hopefully, it will be good news. Still waiting for the swelling in Marks arm to decrease so we can resume PT and OT.
Thank you for your input; it never entered our minds to check with a case worker at our insurance company. I will try that avenue and see where it takes us.
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Arlene,
I can only imagine how disheartening your appointment must have been last week. But I'm encourage by your statement "we will never give up." Do you have to travel far for the ultrasound appointment at the end of the month?