Connect
← Return to Parsonage turner syndrome *
Discussion
Comment receiving replies
For what it is worth, my parsonage Turner was apparently directly related to something called a thymoma, a very rare form of cancer. It is quite treatable when caught early. You may want to mention that they should image your thymus. The oncologist at Penn see these two conditions so rarely there is no medical information available and so there are no studies endorsing any form of correlation here. But thymoma is typically related to an autoimmune condition, and parsonage Turner is just such a condition. The chances may be small, but it was what was causing my condition. Once the tumor was removed the pain was gone.
Replies to "For what it is worth, my parsonage Turner was apparently directly related to something called a..."
Thanks very much. It's two years tobthebweek when I was going in for shoulder surgery to take care of this pain and Penn discovered instead that I needed a new aortic valve and had a thymoma. Big change of plans there!
Merry Christmas
@dear painful. i am here to let you know that others such as myself do care for you and your suffering. it was not to long ago i lay on the couch or in the bed suffering with my swollen knee, foot, etc and nothing really stopped the pain. it took more than six months and then another area of the body took over. two years of psoriatic and rheumatoid arthritis took over taking turns with my body. we do understand your suffering and wish we could help in some way. i leave it up to the others who have experience with your health problems. have a good holidays.
i would like to add that you must be careful even with advil or tylenol. they do affect the kidneys, liver and etc. when the pain goes on for a long time the pain pills take their toll. peach over and out.
Thank you
Connect
@andylevine, Thank you for your response to @painful.
And - I think your responses are worth a lot! When dealing with a rare condition, it is always comforting to hear from someone who has experience with the same thing.
Rosemary