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Axonal peripheral neuropathy: Finally, a diagnosis!
Neuropathy | Last Active: 17 minutes ago | Replies (200)Comment receiving replies
@njed Good morning, Ed. Our two paths through this PN experience continue to run in parallel. It's no wonder I check in with you from time to time to ask things like, Has this also happened to you yet? When was its onset? Have you found anything that gives you relief? You write, "Oddly enough, I felt bad for [the doctor]." I don't find that odd at all. I think its great that you could feel some of what your doctor was feeling, Empathy is a commodity sadly missing in the world today. Here's wishing the best possible day today! –Ray
Replies to "@njed Good morning, Ed. Our two paths through this PN experience continue to run in parallel...."
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@ray666 Ray, like others, parallel symptoms are more common than we may think. Imagine how many other people with PN have no pain, poor balance, numbness and are not on the Connect for PN. We hear from those who participate here but what about those that don't. The more I read up on this disease, I am becoming more confident that many cases are genetic related going back how many years. Case and point: I have a second cousin who has PN, he has pain, poor balance, numbness. Oh yea, idiopathic. Diagnosed at age 65. I too was 65. Coincidence?? Possibly one of your great great grandparents started with PN in their 60's and only lived until 70. To them, it was just a little numbness in the feet. And the damn thing skips generations. Also, what percentage are medication related when these meds didn't exist 60 or 80 years ago and let's not rule out causes of PN environment related. The list goes on and on. Parallel symptoms with causes unknown. By the way, with my cousin, his dad and my grandfather were brothers....smoking gun??