Yes I have not been hospitalized. The neurologists were unable to explain the disease to me. Of course my family Dr told me to Google it. The neurologists told me it was untreatable and all they can do is medicinally keep me comfortable but I am unable to afford Lyrica and I am unable to take anti inflammatorit's because it makes the swelling worse. That's all I was offered. To say the least I'm a mess and the more stress I have the more pain I have.