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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@adriennes

I also have PTS, I felt your pain literally. I have a rare form, involving medial, radial and ulnar nerves. I'm a year in, all I can tell you is use heat and ice, do you have a tens unit? It helps me get movement in my arm and fingers, I walk but I understand you can't, time is all the dr's can tell me, it is very slow and painful, most people recover in a year or two. I was told most of my hand and forearm deficits will be permanent, I refuse that diagnosis, work the muscles you can with range of motion, don't over work, it is a very long recovery. My heart and prayers go out to you.

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Replies to "I also have PTS, I felt your pain literally. I have a rare form, involving medial,..."

It seems I have they same rare form where I have lost they ability to open my right hand and have about 20% strength in my grip strength, wrist and tricep. I'm only a couple months in and my hand and forearm are starting to look like a skeleton from the muscle wasting. I've always been a big strong guy and work out often and this is devastating to me. It's been a year since this post that I'm replying to... any words of encouragement?