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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Aug 4 7:56am | Replies (239)

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@adriennes

This doesn't really help, Thankyou though, my PTS isn't following the norm this is why I'm looking for anyone else ,

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Replies to "This doesn't really help, Thankyou though, my PTS isn't following the norm this is why I'm..."

I wanted to get on to help. I am an RN and my husband has Parsonage Turner Syndrome. He was diagnosed at Mayo 20+ years ago. It affected his brachial plexis nerve. He recovered about 90%. However the right side of his diaphragm doesn't expand well. His right arm which was completely atrophied recovered. We've been married 14 years, so I didn't experience this with him at the time but noticed the residual. A couple months ago, in May he was hopitalized because he quit breathing. The Doctors ran so many tests and the only diagnosis they could come up with was hypoxia. What they missed was he had a virus which he almost died from which in turn set off his Parsonage Turner Syndrome. All the pain in his right arm, across his abdomen and in his lower back were results of this. It didnt occur to me at first but I specialize in pain management and this was nerve pain. I contacted his doctor to start Neurontin (Gabapentin) right away. It works miracles. His pain is under control and he continues to try and use his right arm so it won't become flaccid. What is sad reading, is that doctors are using narcotics and and not medd for nerve pain. Neurontin, lyrica, antidepressants work for nerve pain. Put your doctors on the right track so you can get relief