← Return to Parsonage turner syndrome *

Discussion

Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

Comment receiving replies
@lisalucier

Hi, @adriennes. I'd like to add my welcome to Mayo Clinic Connect. I am sorry that you went through agony, and I'm glad to hear that you can function now.

Glad you have now met @johnbishop. I also thought you'd like to meet two of our other volunteer mentors who are knowledgeable about brain and nervous system disorders, @kdubois and @kariulrich.

Are you finding anything that helps with the weakness, numbness and pain?

Jump to this post


Replies to "Hi, @adriennes. I'd like to add my welcome to Mayo Clinic Connect. I am sorry that..."

I use a tens unit, heat and ice, I sleep sitting up packed in pillows, for a year now, I can't lie down for more than a couple minutes, my brachial plexus starts screaming all through out my neck, shoulder, arm, hand, fingers, I take gabapentin, though I hate it I know when I don't take it. I practice pilates, when I do I am so close to the old me, it helps so much, and yes I do take low dose pain killers occasionally, but no longer daily at all.

And walking, I walk miles and miles, hope this helps anyone else

I have not found anything that has helped alleviate my numbness. My numbness is mainly in the face which causes other issues, such as: Runny nose,feeling hot and borderline sweaty, blurry vision etc. This gets really bad sometimes. When I raise my arms at shoulder level or above, that is when it gets bad. Face becomes more numb, hot, sweaty and a feeling of loss of balance. Why is this?

Doctors tell me that I have nerve damage in the C4/5/6 in the neck. Okay, I had cervical stenosis surgery in July, that did absolutely nothing. The numbness in my face never goes away, it's there 24/7, my feet get numb as well. I have had several MRI's, scans, whatever, doctor tells me that there is nothing they can do for nerve damage. I think it's more a lack of concern and effort on their part. Meanwhile, I just continue to suffer.