@keeg1010
Hi Kerry,
Thank you so much for joining this discussion and sharing Keegan's journey on Epidiolex! 💜
Two years seizure-free, and now seizure-free again since March — that's truly wonderful news, especially given how resistant MTS (mesial temporal sclerosis) can be to typical medications.
You brought up such an important point about Epidiolex being temperature-sensitive — it was actually your experience that made me rethink how I was getting mine. Thank you so much! 🤗
Before, I bought it directly from a manufacturer, which delivered it to my home without proper refrigeration care. But after hearing what happened to you, I switched to a different manufacturer and now buy it directly at the pharmacy here, where I know it's properly refrigerated the whole way. Since then — February 2026 — I've noticed a huge change in my seizure control. I've just had two mild focal seizures: one caused by pain before a surgery that kept me from sleeping, and the other from a period of significant stress.
Chris