@lindam272 , Linda, I would continue to pursue the Mayo there in Az. Sometimes openings come up, also ask more about the insurance thing. The Mayo in Jacksonville files the paperwork, but I have to pay them, and then Social Security pays me back. If you absolutely cannot get in, then you may try asking your I.D./pulmonologist if they are willing to confir with a Mayo doctor for additional input. There have been other members whose private doctors did that. Do you actually have the CF gene?

@windwalker - Terri, I will call from time-to-time to see if anything opens up. It's not the end of the world as I have my CF doc and my infectious disease doc. My ID doc interned under James Cook at Loyola, one of the top MAC docs in the country and he consults with him about my case. As for the CF, I do not have the gene mutation but am atypical. My first sweat test came back positive, 2nd more in the gray area and 3rd a little lighter shade of gray but still in the low positive range. I will have another one in the next 6 months to see how that turns out. Thanks so much! Linda

@lindam272, Hi Linda. I tested negative for the CF gene also, but I had all of the of the symptoms of a person with CF. I am sorry you are not feeling well lately. Unfortunately these kinds of setbacks do come with the territory. All we can do is stay diligent. I know you will get back to your old self again in time. Big Hug to you.

@lindam272, Hi Linda. How was your Thanksgiving? How are you feeling these days? I am hoping you have improved since Oct 30th. I was doing pretty good for quite awhile, but I feel like I have pneumonia. I noticed today that I have a stabbing pain on the right every time I cough or clear my throat. I find it perplexing as I am halfway through a monthly maintenance antibiotic. Hmmmmm. Did you ever find another good doc to see?

@lindam272 Just a little more input. I had good treatment at the UofA hospital in Tucson, and Sunrise in Las Vegas. Mayo not so much. In fact, crappy and expensive. Should have gone out on the Navajo or Hopi Rez.

@windwalker , Hi, Terri, My Thanksgiving was awesome! Thanks for checking in with me. I'm feeling pretty good. Just got through a course of prednisone to try and relieve a persistent cough. Nurse felt it was more asthma related. I finished the steroid on Thanksgiving day and seem to be doing much better now. I really need to start working out to build up my strength. I'm going to yoga once a week most weeks but haven't gotten back to strength training or cardio yet. Hope to get that going next week and try to work into my routine. I'm waiting for my sputum culture to come back to find out results of that. Should be in within the next two weeks. Until then, I'm coasting. I'm not as good as I was 6 months ago but I'm better than I was last month so I guess that's progress! I haven't looked for another doctor yet. I'll still with my ID doc and CF doc for the time being unless something comes up that I'm not happy with. I hope what you have isn't serious and that it's not pneumonia. The antibiotic you are taking may not be effective for pneumonia so it's possible it could sneak in in spite of that. Praying it's not though! Linda

@oldkarl - Who did you see in Tucson? Was there a specific doctor you liked there? Linda