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Axonal peripheral neuropathy: Finally, a diagnosis!
Neuropathy | Last Active: 20 hours ago | Replies (199)Comment receiving replies
@carayjoh58 It is indeed a crazy disease! I've had to learn that, when what you have is "idiopathic," not to expect too much from a doctor. I still remember my first EMG, how, when he was done, the doctor drifted away from the exam table rather than coming to me directly with the results. He stood looking out the window for what to me felt like an hour, but was probably more like two minutes. I know now the doctor was simply collecting his thoughts, knowing he had to tell me my PN had a unknown cause and there was little or anything he could do for me. Best wishes to you, carayjoh58! –Ray (@ray666)
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@ray666 I guess we need to remember that doctors are humans. The fact the doc wanted to collect his thoughts and present the PN diagnosis in the best way he could was I'm sure appreciated. When I went to Mayo in MN, at the end of the testings, the neurologist walked out to discuss the final diagnosis with me, and I knew it wasn't good. The look on her face said it all. She was disappointed to inform me there is no cure for my type of PN and both my wife and I noticed a tear in her eye. Oddly enough, I felt bad for her. Now, 6 years later, she was 100% correct on everything she told me. I consider her to be one of the best neurologists I ever met. It was obvious she cared.