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zachary777 avatar

Hypothalamic dysfunction symptoms?

Diabetes & Endocrine System | Last Active: Sep 10 3:07pm | Replies (2)

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Profile picture for gretchenmpls @gretchenmpls

Hello @zachary777 I am sorry to hear of your symptoms and no-so-great quality of life you are experiencing. As a endocrine rare disease patient with multiple other diagnosis, I can empathize with the chasing down the next solution. Your message is from August and I'm only seeing it now. How did your next appointment go with your endocrinologist? As we know, normal lab results do not indicate we feel okay. New swelling should prompt re-imaging and marker testing rather than reassurance. This article talks about the symptoms you are experiencing having hypothalamic injury. https://pmc.ncbi.nlm.nih.gov/articles/PMC13466942/ I had normal thyroid labs and many other labs, but my symptoms were such that scans of the glands were a bit abnormal and we tried certain medications that ultimately gave me back my quality of life - despite being in the normal lab range. My personal 'normal' fell inside the general public normal range and when I creep outside of MY normal, symptoms appear. Keep advocating for yourself and I hope you find relief!

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Replies to "Hello @zachary777 I am sorry to hear of your symptoms and no-so-great quality of life you..."

@gretchenmpls My endocrinologist essentially said there is nothing they can do and to just treat the symptoms. So that was great. I’ll try and press a bit more as you suggest. Thanks for the article — I’ll be sure to read up on it!