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@kdubois

Hello @sauvee, I have experience with pituitary adenomas (tumors). I’m not sure if a pituitary “cyst” is the same thing, but given the symptoms you are experiencing and the knowledge that there is something located on your pituitary gland, I suggest consulting with an endocrinologist and a neurosurgeon, hopefully two doctors that partner regularly. An endocrinologist is essential in proper treatment of these things.

There are different diagnoses for pituitary adenomas based on the location of the adenoma because the location defines the diagnoses along with lab testing:
• Adenomas on the front of the pituitary (anterior) usually result in the body’s production of too much growth hormone and insulin-like growth factor 1 (another growth hormone).
• Adenomas located on the back of the pituitary (posterior) are called a prolactinoma. This causes the body to produce too much of the hormone called prolactin.

When you first see an endocrinologist, they will send you for a bunch of lab tests to determine if these, plus other, levels are higher than standard range. (FYI, by “high” they don’t mean a few points above high, they mean levels that are significantly higher than normal.)

The treatment option usually chosen first is resection of the tumor via surgery. If that fails, then they use medication to control the hormone levels.

Increases in all of these hormones can cause weight gain, chronic fatigue, body wide aches and pains, and more.
• When the issue is the growth hormones, you can also experience profuse, unexplained sweating, and over time, growth of feet, hands, and head. This medical condition is called acromegaly. Children for have acromegaly also grow very tall.
• Increased prolactin levels can cause breast leakage (in both men and women).

It is not uncommon for a pituitary adenoma that becomes large enough to affect vision.

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Replies to "Hello @sauvee, I have experience with pituitary adenomas (tumors). I'm not sure if a pituitary "cyst"..."

Thank you for posting all this good information on pituitary tumors. My daughter in-law had surgery last year for a large (acromegaly) pituitary tumor that due to it being close to artery, surgeons could not completely remove. Five months after the surgery, the tumor had grown back and she is now scheduled to have surgery again, with radiation treatment following. Fortunately, she has not had diminished vision.

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