← Return to Uterine serous carcinoma: What led to your treatment decision?

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dmarkz0101
You have really been through so much already, I can understand your reluctance to submit yourself and your family to more pain. At least the hysterectomy should not be too bad of an experience with the laparoscopic techniques they now have. I had to have a 12inch incision midsection down my abdomen due to the cancer being spread out of my uterus into my abdominal cavity. They gave me a elastic stomach binder to wear after surgery which made the incision pain really easy to deal with.

Your cancer will be staged after the hysterectomy, hopefully it was caught in an early stage.
My cancer was at Stage IV B, which means it had metastasized out of the uterus. I did the standard carboplatin/taxol/keytruda routine. I was offered a maintenance routine of keytruda every 6wks once the main treatment series was completed and declined it due to the lack of molecular/genetic markers in my cancer that keytruda works on.

-Cancer returned 10 months after the last treatment.
-During treatment the first 2 days after infusion were ok, then nausea and no appetite, took 1 hour to eat a small meal.
-First week after infusion bone pain at night, second week skin rashes.
-Did not recover from chemo side effects until day before the next infusion.
-Neuropathy in feet/hands after third infusion even with icing during infusion.
-Vertigo after 4th treatment and extreme itching on feet/hands, responded well to Gabapentin.
-Energy level has never recovered but improved 3 months after the end of treatment.
-Due to lower energy levels and brain fog from chemo I no longer have interest in most hobbies I enjoyed before chemotherapy, activities which require too much concentration/energy are not appealing. I am a different person now and am just concentrating on moving forward.

-I have a friend whose serous/clear cell cancer is HER+ , she went through the chemo series and is doing well on Herceptin maintenance with little side effects. Think her cancer was at Stage III at the start of treatment and she is now 2years out from the end of the chemo series and doing great. If you "luck" out and have an estrogen positive tumor there could be a maintenance therapy you will tolerate.

Glad you have family that is there for you, hang in there. Prayers for good surgery results!

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Replies to "dmarkz0101 You have really been through so much already, I can understand your reluctance to submit..."

@beebe Thank you for responding. Your kindness is very much appreciated. I'm doing my best to stay as positive as possible. What God has in store for me no one knows but I'll continue to pray. Sending you love and prayers.
Donna