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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 2 days ago | Replies (714)Comment receiving replies
@colleenyoung
Hi Collen, I'm trying to find a specialist at Mayo Clinic Rochester for my peripheral neuropathy likely due to Sjogren' syndrome. I live in Twin cities. My symptoms started with small fiber peripheral neuropathy(based on EMG). I have seen a Neurologist and a Rheumatologist at Twin Cities and awaiting a lip biopsy. I do not have any Dry eyes (Sicca symptoms). My Rheumatologists have suggested a second opinion for Sjogren's associated neuropathy. Is there a Neurologist/Rheumatologist/collaborated clinic that you can suggest at Mayo Clinic Rochester so I can make an appointment. Thanks.
Replies to "@colleenyoung Hi Collen, I'm trying to find a specialist at Mayo Clinic Rochester for my peripheral..."
@gqadri2002
These are the current Rheumatologists in Rochester that specialize in Sjogrens:
https://www.mayoclinic.org/appointments/find-a-doctor/search-results
The only one I know is: https://www.mayoclinic.org/biographies/thanarajasingam-uma-m-d-ph-d/bio-20149105 and she is great.
Dr. Berini is a Neurologist and peripheral Neuropathy is one of her specialties. https://www.mayoclinic.org/biographies/berini-sarah-e-m-d/bio-20055709
She is highly regarded.
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@gqadri2002
I was diagnosed with Sjogren's in 2011. In 2024 I told a DPM (podiatrist) about the stabbing, electric shock feelings, and the sensitivity in my feet. He did biopsies on both feet and diagnosed peripheral neuropathy. I then requested a neurology appointment at Mayo and sent the records and biopsy results from the podiatrist, as well as the Sjogren's diagnosis. It took a while to get an appointment, but I ended up seeing Dr. Sarah Berini at Mayo, Rochester. She did a number of tests on my feet and then ordered a battery of additional tests, some of which were unpleasant, but necessary, in order to develop a correct diagnosis. She determined that I have Sjogren's related peripheral neuropathy as well as autonomic neuropathy. (Autonomic neuropathy is damage to nerves that control automatic functions of the body, like heart rate, blood pressure, or sweating.) Dr. Berini called my rheumatologist in St. Paul to coordinate care and the rheumatologist prescribed an immunosuppressant (CellCept) to keep the immune system from attacking the nerves. I don't know if the scheduling systems allows you to request a particular doctor, but Dr. Berini is outstanding!