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Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Neuroendocrine Tumors (NETs) | Last Active: Sep 13 7:34am | Replies (18)Comment receiving replies
husband had surgery in June. Small 1 cm tumor was successfully removed, margins clear, and no spread to lymph nodes. The pathology report was inconclusive however so specimen sent to Mayo Clinic. Just now got report back with diagnosis of high grade neuroendocrine carcinoma. We were in Europe when we got this news., Just completed a chest CT and waiting for brain scan which isn't until Sept 20, and don't see surgeon until Sept 30. We are very concerned and feel we need to push things along quicker and probably get referral to oncologist. Have no idea how this will be treated, or what prognosis will be. Have message Dr and asked to expedite things. We have a cruise booked, leave on Oct 4 and return Oct 20. Thinking we should probably cancel this cruise and focus on treatment???
Replies to "husband had surgery in June. Small 1 cm tumor was successfully removed, margins clear, and no..."
Hello @pattior
I would like to join @tomrennie and welcome you to Mayo Connect. Neuroendocrine tumors (NETs) are rare, accounting for approximately 0.5% of all newly diagnosed cancers. In other words:
About 1 in 200 new cancer diagnoses is a NET. NET incidence has been increasing, partly because improved imaging and pathology detect more cases. In the U.S., the overall incidence of neuroendocrine neoplasms was about 8.5 per 100,000 people per year in 2021.
Cancer.gov
I am glad to hear that your husband's pathology report was sent to Mayo Clinic for verification. Is he able to be treated at Mayo as well? I am also wondering what type of symptoms your husband was having that led to this diagnosis.
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@pattior Hi and welcome to Mayo Connect. Sorry to hear about the diagnosis. It can take your breath away. You say that it is a high grade neuroendocrene carcinoma. Do you know what grade it is?