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Profile picture for shelleyletts @shelleyletts

A very controversial subject. I have had Covid vaccinations, and flu shots. Since having Poly I have been sicker longer than other people, which is the way it is and I could handle that. I recently talked to a woman on another support site who got a tetanis booster and ended up in Mayo Jacksonville on a ventilator with Gillian-Barre. For months. They told her it was from the shot. I said whoa, that doesn’t sound like Mayo, and she said that is what they said. She has to have ramps built in her house because she now has mobility issues, and challenges that are worse than the Poly she had in the first place. I realize this is all second hand info, but that is what she told me. And I have heard this before as well. I am not an anti vaxer, but I will not be getting any more. I have had Poly for 11 years, Shogrens for 13, and I am 75, I feel the risk is too great. Every Dr I have asked about this is rather disinterested as autoimmune problems are nuisance diseases that are hard to treat and I have or could have corrected many statements from Drs who after two sentences indicated their ignorance of the situation. It is a judgement call that you have to make. Do some research, consider your options. We are all different and respond differently to meds. I am very sensitive to most and allergic to many, and after having autoimmune issues all these years, I feel very vulnerable. I have developed so many allergies to meds, food, fabrics, lotions, and eye drops since getting Poly I feel I need to stay away from vaccinations. But like I said, we are all different even on the same road.

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Replies to "A very controversial subject. I have had Covid vaccinations, and flu shots. Since having Poly I..."

@shelleyletts
I'm always skeptical of anyone saying they were told something at a medical facility because you never know whether they were told by a doctor, nurse, technician or other. Thanks for sharing so anyone concerned can discuss with their doctor. I only get vaccines when requested by my doctor. I'm not anti-vax either but I'm not going to be aware of interactions with my meds like any of my doctors will be.