No, the cancer doctors at OHSU Portland are not recommending any surgery. The last swallowing examination in had at OHSU said there was nothing that could be done and I would have to live with it. The problem I have is mucus drainage (side effects from my first cancer treatment with radiation 2010) couple with saliva. It drains down my throat forcing me to hack it out. Movement of my jaw seems to perpetuate the condition. So, I usually keep my mouth shut and do not start conversations. Even if I just hacked out everything, I have a tenancy to spit when I talk, because I have to force my words to be understood.
My Gastroenterologist said the point of entry looks better than most. I shower about 3-4 a week. I have my PEG replaced about every 4 months. Balloon does last. After the second feeding of the day, I will usually push fluid out. The amount is dependent on the amount of activity. I use a snap in place cloth sleeve with a medical sponge backer. I do not have a medical team for my port. Of course I do have a doctor for my prescription of formula. But I have been designating what I want. I have been trying to get on Kate Farms 100% (much more natural), but it has proved to be too gassy for me. I blow up like a ballon, a lot of pressure. It is no wonder why I have leakage and bial coming up occasionally. I am going to have drop it to 50% and use 2Cal (have you read what is on the package of ingredients. Nothing that can recognize) for the other 50%. My next appointment is in November to have my formula change.
I have no surgical medical team at this time. My ENT thinks that the graft taken from my arm to replace the cancer that was on bottom of my tongue and soft platte is too tight and is pinning my tongue down.
I have asked these questions to gather data on what should before I look to another specialty hospital.