@mommacandy , Good Morning
Thank you for the updates! I want to start with what matters most right now to you. I'm truly sorry to hear about the residual cancer cells shown by your last CT scan. It's more than natural to have the feelings you've been having. Leaning on prayer and trying to keep a positive mindset can make such a difference in moments like this, as I also believe. During the fear, anxiety, and stress I went through in my own epilepsy journey, I also tried to keep my mind focused on the present moment, making the best of each one, and following my yoga teacher's advice not to anticipate possible "future belly pains," as he likes to call it.
It's reassuring, at least, that you did see an epilepsy specialist. As I experienced myself, low sodium levels are a trigger for seizures — this was actually the trigger for my first tonic-clonic seizure after being diagnosed with epilepsy, following my start on Trileptal (oxcarbazepine), a traditional, older anti-seizure medication that works as a sodium channel blocker. Vimpat (lacosamide), which I also tried afterwards, can cause low sodium too, though the risk appears meaningfully lower than with older sodium channel blockers. In your case, as your team mentioned, the drop seems more tied to the chemo cycle itself rather than the Vimpat itself.
Please know this community is here for you,💜
Sending you strength and peace as you move through this. 🙌🙏
Chris