← Return to Metastatic Bladder cancer & Padcev w/ Keytruda success

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Metastatic Bladder cancer & Padcev w/ Keytruda success

Bladder Cancer | Last Active: Sep 14 10:09am | Replies (21)
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@bcm6968 That is amazing!! I'm very happy for you!

I'll have a scan in October to determine if it's working for me. This is my off week and next Monday starts round 4. My hair is almost all gone, I have no energy and just want to sleep, and my taste buds are nonexistent. Small twinges of tingling in my feet but not too worrisome right now. I'd love to drop down a dose next Monday but I went down one level after the first round. I'm not sure if I should ask or not. I just want it to work so that I can stop as well! The thought of doing this for a year is overwhelming.

I appreciate you sharing your great news!! Congrats!!

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Replies to "@bcm6968 That is amazing!! I'm very happy for you! I'll have a scan in October to..."
bcm6968 | @bcm6968 | Sep 7 11:49pm

j@owilliams1
I am sorry that you are having such strong side effects. I hated losing my ability to taste my food. It made it so eating was boring. I know that I dropped a few pounds because I didn't eat as much as I usually do. I was grateful that it was loss of taste and not that things tasted bad.

I would encourage you to stick it out until your PET scan. The hope being that you will be able to see enough of an improvement to know that it is working. Then cutting back so that you can get your energy back. For me, my taste came back within 2 weeks of cutting out the Padcev.

I will continue to pray for yout health to be restored.

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