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Why is seeing a NET specialist important? How to find one?
Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (42)Comment receiving replies
@jerrydanhuffman I recently learned that it is quite common for endocrinologists to deny referrals from NET patients, as many endocrinologists focus on glands and diabetes. I am now awaiting results of a referral to a gastroenterologist who can address GI issues resulting from NET's. Meanwhile, I am researching an in-person multi-disciplinary consultation at Cleveland Clinic, where my health insurance is in-network.
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Good luck with navigating to a NET specialist at Cleveland Clinic:
https://my.clevelandclinic.org/departments/endocrinology-metabolism/depts/adrenal-neuroendocrine-tumors
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I'm still navigating myself through the VA bureaucracy. I used to work at the University of Iowa until I retired. My wife was an oncology nurse at the University until she retired. The challenge has been coordinating with all the specialty team members both at the VA Hospital and the University. All of the "specialty team members" except the actual NET specialist work at both the VA and University Hospital.