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Please share your experience with Abiraterone/Prednisone
Prostate Cancer | Last Active: Sep 9 9:35am | Replies (45)Comment receiving replies
I was diagnosed with metastatic prostate cancer (Gleason 10) approximately 5 months ago. My psa value dropped significantly in a month. I'm an active 80 yearold who has experienced many side effects will taking Abiraterone and Prednizone. I have hot flashes , enlarged breast, loss of libido, fatigue, blurry vision and depression. My cancer team has stopped the Abiraterone for two weeks. We are hopeful that the side affects will be reduced. After a week, the side effects are still affecting my day-to-day life. I'm meeting with my Care Team this week to discuss options. Good luck to you and your husband.
Replies to "I was diagnosed with metastatic prostate cancer (Gleason 10) approximately 5 months ago. My psa value..."
@huskerbeans
Two weeks off of abiraterone Is like putting a drop of water in a glass of water figuring it would make a difference. It takes months before your testosterone comes back after being on abiraterone. You really need to be off of it for probably a year before your testosterone gets to a level where you do not feel those side effects. The problem is, however, that you’re Almost definitely also on another drug that drops the level of your testosterone. You must be on ADT using Orgovyx, Lupron, Eligard or one of the other drugs that is ADT.
All of these side effects “ hot flashes , enlarged breast, loss of libido, fatigue, blurry vision and depression” are also caused by ADT. You would have to be off both of them to really stop this from happening.
This is just one of the things you have to live with prostate cancer to keep it under control. I’ve been on ADT for nine years, And lucky people that doesn’t get fatigue, but I do get lots of hot flashes, loss of libido weaker bones, and I’ve lost a lot of muscle.
The hot flashes can be resolved by certain drugs, I was getting depo-provera Shots every three months and it worked great until I went on Zytiga Which made the hot flashes worse. There are a number of other drugs that can help. I also wear a Embrlabs Wave 2, It canreduce the hot flashes in the day and pretty much eliminate them at night. It’s a problem continues. I can also post a message about the drugs that work To stop flashes.
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@huskerbeans
I am so sorry to hear that you had such severe side-effects from Abiraterone. It seems like majority of patients have bad long cj with this drug.